Your family will be supported by a team who will build relationships with your child, family, primary care provider and specialists. Every child’s care is designed to meet their unique and complex needs.

Our nurse clinical care coordinators assist with medical advice, clarify day-to-day treatment plans and triage calls. Your primary nurse practitioner will serve as a team coordinator, assist with pain and comfort management and support decision-making. You will also collaborate with social workers who will identify community resources, provide help acquiring supplies and equipment, support decision-making and provide emotional care resources.

Our board-certified palliative care physicians will be part of your team and support your care team throughout your journey. Our child life professionals use many skills to help build relationships to determine specific needs for each child and family member, prepare children for upcoming procedures and assist them in working through feelings about past, present and future experiences. Our clinic lead provides front-line support and appointment coordination.

Locations of visits include home- or clinic-based appointments (virtual or in-person) every 1-3 months and hospital visits while inpatient.

A primary care provider, specialist or a NICU team member provides a recommendation for eligible patients to enroll in Partners for Children-Little Heroes League. If your child qualifies, a team member will contact you and provide further details on the program and services provided.

For providers with questions or referrals to the Partners for Children-Little Heroes League program please submit a referral, email [email protected] or call 734-763-9418.

The programs supports eligible patients by providing care coordination and palliative care regardless of your child’s location, at home, in the clinics or in the hospital by:

• Providing at-home and virtual appointments every 1-3 months to ease the burden of travel and address concerns or care coordination
• Collaborating with your child’s primary care provider and specialists to manage psychological, social, and physical symptoms
• Preventing, shortening, or helping coordinate hospital stays and discharges
• Providing symptom management and advanced care planning
• Helping with decision making and providing emotional support
• Identifying goals that support your child’s quality of life
• Reducing emergency room visits and facilitating coordination of care with your providers when an ER visit is necessary
• Assisting with important specialty clinic visits and coordinating team communication
• Helping develop a daily and/or emergency care plan
• Facilitating conversations with school personnel
• Connecting your family to available community resources and state programs

Partners for Children-Little Heroes League provides around-the-clock phone support for existing patients with urgent medical questions.

• Make a Wish – Empowers children with life-threatening medical conditions to fight harder against their illnesses through extraordinary wish-granting experiences. 

• Believe in Miracles – Supports suffering children by providing a personalized gift to bring joy during their most difficult time.  Each child will receive a trophy to acknowledge their courageous fight.
• Courageous Parents Network
• Wonders and Worries
• Family Reflections